Online Resources

When Joe was on his journey through the medical world I turned to the internet for information on what drugs he was being given and what they did to and for him.  I would do research on procedures that the doctors wanted to do.  When I was given his first CT scan I read through it and underlined words that I didn’t know what they meant.  I went online usually to and looked up each word and then rewrote the report using the meanings I had looked up.  That way I could better understand what was going on in Joe’s head.

Following is a list of sites, organizations and books that helped me.  I hope they are of some help to you.  If you have any questions you can contact us here at the foundation and we will do our best to help get you the information that you need.  I felt as Joe’s caregiver that I was fighting the battle to keep him safe and hopefully help him get better.




Below are additional links to organizations that are focused on other aspects of health and well being.

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